Category Archives: Advocacy

Dear #ChicagoMed ~ #MitoIsReal

Last Tuesday I set my DVR to record ChicagoMed, a show I had never watched before, but one which I had heard would be featuring a storyline about mitochondrial disease. I was curious how this diagnosis would be portrayed on … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , | 2 Comments

Is Autism Medical? Pittsburgh Parent Magazine September 2015

I had the privilege to write this article about the scientific and medical underpinnings of AUTISM in the September 2015 issue of Pittsburgh Parent Magazine. PDF Version here: Is Autism Medical?

Posted in Advocacy, Autism, Autism Prevention | Tagged , , , , , , , | 3 Comments

One Mom’s Experience: Vaccine Titers

This story was shared with me, recently,  by a mother who chooses to remain anonymous, about her experience with obtaining titers for her child. In her own words… I have always wanted to be a mother, for as long as I … Continue reading

Posted in Advocacy, Autism Prevention, Awareness | Tagged , , , , , | 24 Comments

How to feed your family without Losing your MIND!

When we began this journey with a very fussy, “colicky” baby girl, all I wanted to do was feed my family. All I wanted to do was nourish the little ones (and one big one) who were counting on me … Continue reading

Posted in Advocacy, Allergies, Conference, Medical, Organic, Pesticides, Research | Tagged , , , , , , , , , , , , , , | 7 Comments

Mitochondrial Week #1min4mito 2014 Wrap Up

As Mitochondrial Disease Awareness week 2014 wraps up, we are posting a compilation of the 7 Mitochondrial Minutes that we have shared via social media this past week. Please feel free to continue to share these anytime and anywhere, just … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, Mitoxic, Toxins, UMDF | Tagged , , , , , , , , , , , , , , , , | Leave a comment

Cancer, Autism, and Faith

A number of years ago, when we were in the thick of reactions, hospitalizations and testing, trying to figure out what was wrong with our little one,  I struggled to find a church home where I could find peace, solace, … Continue reading

Posted in Advocacy, Autism, Hope, Medical | Tagged , , , , , | 1 Comment

Vaccination: A Conversation, Pittsburgh, PA

Yesterday, I had the amazing opportunity to attend an event in what has to be one of the most beautiful spots in Pittsburgh: The Phipps Conservatory. Surrounded by the most beautiful plants, tress, and flowers: thought leaders, practitioners, and parents gathered … Continue reading

Posted in Advocacy, Conference, Genetics, Medical, Methylation, Mitochondrial Disease, Mitoxic, Research, Toxins | Tagged , , , , , , , , | 1 Comment

#mito2014 Mitochondrial Symposium Top 10 Takeaways

Top 10 Takeaways from the UMDF 2014 Mitochondrial Disease Symposium in Pittsburgh PA, June 6-8, 2014   1. Scientific Meeting- Leonid Sazanov presented specifically on the structure of complex 1. He commented also on how the well-known cplx 1 inhibitor ROTENONE  (pesticide) works. I was … Continue reading

Posted in Advocacy, Awareness, Genetics, Medical, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , , , , , , , , , , , | 3 Comments

A Consumer’s Reflections on #ACMGmtg 2014

Recently, I had the opportunity to attend the American College of Genetics and Genomics meeting in Nashville, Tennessee.  This opportunity was made available to me through a travel grant application I submitted through the regional genetics collaborative that I have … Continue reading

Posted in Advocacy, Autism, Baby's First Test, Genetics, Medical, Mitochondrial Disease, Newborn Screening, Research | Tagged , , , , , , , , , , , , | 1 Comment

#1min4mito Week 7: Mitochondrial DNA defects vs. Nuclear DNA defects

(please forgive us, we are still trying to catch up!! This is an important clarification! Many in the medical field hear the word mitochondrial disease and automatically assume that the disease came from the mother and that the genetic abnormality … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitochondrial Disease | Tagged , , , , , , , | Leave a comment