Category Archives: UMDF

Dear #ChicagoMed ~ #MitoIsReal

Last Tuesday I set my DVR to record ChicagoMed, a show I had never watched before, but one which I had heard would be featuring a storyline about mitochondrial disease. I was curious how this diagnosis would be portrayed on … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , | 4 Comments

Mitochondrial Week #1min4mito 2014 Wrap Up

As Mitochondrial Disease Awareness week 2014 wraps up, we are posting a compilation of the 7 Mitochondrial Minutes that we have shared via social media this past week. Please feel free to continue to share these anytime and anywhere, just … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, Mitoxic, Toxins, UMDF | Tagged , , , , , , , , , , , , , , , , | Leave a comment

#mito2014 Mitochondrial Symposium Top 10 Takeaways

Top 10 Takeaways from the UMDF 2014 Mitochondrial Disease Symposium in Pittsburgh PA, June 6-8, 2014   1. Scientific Meeting- Leonid Sazanov presented specifically on the structure of complex 1. He commented also on how the well-known cplx 1 inhibitor ROTENONE  (pesticide) works. I was … Continue reading

Posted in Advocacy, Awareness, Genetics, Medical, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , , , , , , , , , , , | 3 Comments

#mito2014

The United Mitochondrial Disease Symposium is in Pittsburgh this year. Babyfoodsteps will be attending the scientific and some of the family sessions this year. You can follow along!  HASHTAG: #mito2014 We will be live tweeting here. And live “blogging/facebooking” here. … Continue reading

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#1min4mito in 2014

Nearing the end of 2013, Mitochondrial Disease was thrust into the international media spotlight, under the most unfortunate and controversial of circumstances: a custody battle over 15-year-old Mitochondrial Patient, Justina Pelletier, the state of Massachusetts, her parents, and Boston Children’s … Continue reading

Posted in Advocacy, Genetics, Leigh's Disease, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged , , , , , , , , | 8 Comments

Now Wait a Mito Minute!

Mitochondrial Disease Awareness Week continues… Babyfoodsteps has come up with a number of MITO MINUTES and will be posting them on our Facebook Page throughout the week (as well as compiling them here on this page). Please feel free to … Continue reading

Posted in Advocacy, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged , , , , | 1 Comment

MitoAware 2013 ~ Professor B

It is that time of year again.. time to spread awareness about mitochondrial disease. Here at babyfoodsteps we have been doing this for a few years now: here, here and here. So we thought we would start off the week … Continue reading

Posted in Advocacy, Genetics, Medical, Mitochondrial Disease, UMDF, Uncategorized | Tagged , , , , | 1 Comment

Mitochondrial Disease Explained By Professor B

  Last year for Mitochondrial Disease Awareness Week, our son, Professor B, made a video about Mitochondrial Disease and entered it in the UMDF’s Awareness Video Conference. Low and behold… HE WON!! He was THRILLED, to say the least! In … Continue reading

Posted in Advocacy, Medical, Mitochondrial Disease, UMDF | 3 Comments

What does Newborn Screening have to do with Mitochondrial Disease?

Great Question! About a year ago as I was learning more and more about mitochondrial disease… I began asking myself, if Lady A’s symptoms were present since 2 weeks of age, is there (or was there) ANY way that we … Continue reading

Posted in Advocacy, Baby's First Test, Medical, Mitochondrial Disease, Newborn Screening, UMDF | Tagged , , , , , , , , | 7 Comments

UMDF 2012 Mitochondrial Symposium Day 4- Family Meetings and Wrap Up

Well, I had good intentions to have my updates from the UMDF symposium posted by now…. But we spent most of last week in the hospital with Lady A (definitely NOT a “first” that is among the pages of the … Continue reading

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