Tag Archives: umdf

Dear #ChicagoMed ~ #MitoIsReal

Posted on February 7, 2016 by Empowered Advocacy

Last Tuesday I set my DVR to record ChicagoMed, a show I had never watched before, but one which I had heard would be featuring a storyline about mitochondrial disease. I was curious how this diagnosis would be portrayed on … Continue reading →

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , | 4 Comments

#mito2014 Mitochondrial Symposium Top 10 Takeaways

Posted on June 24, 2014 by Empowered Advocacy

Top 10 Takeaways from the UMDF 2014 Mitochondrial Disease Symposium in Pittsburgh PA, June 6-8, 2014   1. Scientific Meeting- Leonid Sazanov presented specifically on the structure of complex 1. He commented also on how the well-known cplx 1 inhibitor ROTENONE  (pesticide) works. I was … Continue reading →

Posted in Advocacy, Awareness, Genetics, Medical, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , , , , , , , , , , , | 3 Comments

MitoAware 2013 ~ Professor B

Posted on September 15, 2013 by Empowered Advocacy

It is that time of year again.. time to spread awareness about mitochondrial disease. Here at babyfoodsteps we have been doing this for a few years now: here, here and here. So we thought we would start off the week … Continue reading →

Posted in Advocacy, Genetics, Medical, Mitochondrial Disease, UMDF, Uncategorized | Tagged , , , , | 1 Comment

What does Newborn Screening have to do with Mitochondrial Disease?

Posted on September 17, 2012 by Empowered Advocacy

Great Question! About a year ago as I was learning more and more about mitochondrial disease… I began asking myself, if Lady A’s symptoms were present since 2 weeks of age, is there (or was there) ANY way that we … Continue reading →

Posted in Advocacy, Baby's First Test, Medical, Mitochondrial Disease, Newborn Screening, UMDF | Tagged , , , , , , , , | 7 Comments

UMDF 2012 Mitochondrial Symposium Day 2- Day on the Hill

Posted on July 2, 2012 by Empowered Advocacy

On Thursday, June 14th, I awoke bright and early to get ready for a day of mitochondrial advocacy! I was headed to Capitol Hill with 2 whole bus loads of folks ready to spread awareness to our national legislators about … Continue reading →

Posted in Advocacy, Medical, Mitochondrial Disease, UMDF | Tagged , , , , , | 6 Comments

UMDF 2012- Mitochondrial Symposium Day 1

Posted on June 25, 2012 by Empowered Advocacy

Last week I headed to Washington DC (specifically Bethesda, Maryland) for the United Mitochondrial Disease Foundation Symposium. This is the first symposium I have attended about Mitochondrial disease in an effort to find more answers for our daughter who is … Continue reading →

Posted in Advocacy, Genetics, Medical, Mitochondrial Disease | Tagged , , , | 4 Comments

United Mitochondrial Disease Conference 2012~ Washington D.C.

Posted on June 8, 2012 by Empowered Advocacy

For this stay-at -home- mom… I sure haven’t been staying home much these past 2 months. Next week, I will head to Washington D.C. for the 2nd time! I was just there 3 weeks ago with the Baby’s First Test … Continue reading →

Posted in Advocacy, Autism, Medical, Mitochondrial Disease, Newborn Screening | Tagged , , , , , , , | 2 Comments