Tag Archives: mitoaction

Dear #ChicagoMed ~ #MitoIsReal

Posted on February 7, 2016 by Empowered Advocacy

Last Tuesday I set my DVR to record ChicagoMed, a show I had never watched before, but one which I had heard would be featuring a storyline about mitochondrial disease. I was curious how this diagnosis would be portrayed on … Continue reading →

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged advocacy, advocacy task force, chicagomed, justina, justinapelletier, mito navigator toolkit, mitoaction, mitochondrial, mitochondrial medicine society, Pelletier, umdf | 4 Comments

What is Somatoform Disorder?

Posted on December 11, 2013 by Empowered Advocacy

If you are part of the mitochondrial disease community, there is no doubt that in the past few weeks you have heard the news of Justina Pelletier, a 15 year old girl who was diagnosed with mitochondrial disease by a … Continue reading →

Posted in Advocacy, Genetics, Glutathione, Hope, Media/Press, Medical, Mitoaction, Mitochondrial Disease | Tagged autism, BCH, boles, Boston, conversion disorder, freud, glenn beck, glutathione, justina, justinia, lactic acid, mito, mitoaction, mitochondrial, parental rights, Pelletier, psychiatric, somatoform | 5 Comments

What does Newborn Screening have to do with Mitochondrial Disease?

Posted on September 17, 2012 by Empowered Advocacy

Great Question! About a year ago as I was learning more and more about mitochondrial disease… I began asking myself, if Lady A’s symptoms were present since 2 weeks of age, is there (or was there) ANY way that we … Continue reading →

Posted in Advocacy, Baby's First Test, Medical, Mitochondrial Disease, Newborn Screening, UMDF | Tagged awareness week, heel prick, metabolic, mito, mito autism, mitoaction, mitochondrial disease, newborn screening, umdf | 7 Comments

United Mitochondrial Disease Conference 2012~ Washington D.C.

Posted on June 8, 2012 by Empowered Advocacy

For this stay-at -home- mom… I sure haven’t been staying home much these past 2 months. Next week, I will head to Washington D.C. for the 2nd time! I was just there 3 weeks ago with the Baby’s First Test … Continue reading →