Category Archives: Awareness

Dear #ChicagoMed ~ #MitoIsReal

Last Tuesday I set my DVR to record ChicagoMed, a show I had never watched before, but one which I had heard would be featuring a storyline about mitochondrial disease. I was curious how this diagnosis would be portrayed on … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , | 4 Comments

One Mom’s Experience: Vaccine Titers

This story was shared with me, recently,  by a mother who chooses to remain anonymous, about her experience with obtaining titers for her child. In her own words… I have always wanted to be a mother, for as long as I … Continue reading

Posted in Advocacy, Autism Prevention, Awareness | Tagged , , , , , | 30 Comments

Mitochondrial Week #1min4mito 2014 Wrap Up

As Mitochondrial Disease Awareness week 2014 wraps up, we are posting a compilation of the 7 Mitochondrial Minutes that we have shared via social media this past week. Please feel free to continue to share these anytime and anywhere, just … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, Mitoxic, Toxins, UMDF | Tagged , , , , , , , , , , , , , , , , | Leave a comment

#mito2014 Mitochondrial Symposium Top 10 Takeaways

Top 10 Takeaways from the UMDF 2014 Mitochondrial Disease Symposium in Pittsburgh PA, June 6-8, 2014   1. Scientific Meeting- Leonid Sazanov presented specifically on the structure of complex 1. He commented also on how the well-known cplx 1 inhibitor ROTENONE  (pesticide) works. I was … Continue reading

Posted in Advocacy, Awareness, Genetics, Medical, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , , , , , , , , , , , | 3 Comments

#mito2014

The United Mitochondrial Disease Symposium is in Pittsburgh this year. Babyfoodsteps will be attending the scientific and some of the family sessions this year. You can follow along!  HASHTAG: #mito2014 We will be live tweeting here. And live “blogging/facebooking” here. … Continue reading

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#1min4mito Week 7: Mitochondrial DNA defects vs. Nuclear DNA defects

(please forgive us, we are still trying to catch up!! 🙂 This is an important clarification! Many in the medical field hear the word mitochondrial disease and automatically assume that the disease came from the mother and that the genetic … Continue reading

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#1min4mito Week 6: Highest Incidence of Metabolic Diseases

(please forgive us, we are a few weeks behind and trying catch up!!) This one floors me. Really floors me. As many of you know over the past few years I have become a HUGE advocate for Newborn Screening.  Metabolic … Continue reading

Posted in #1min4mito, Awareness, Baby's First Test, Mitochondrial Disease, Newborn Screening | Tagged , , , , , , , , , | Leave a comment

#1min4mito Week 5: Mito presents at Any Age

“Mitochondrial Disorders may present at ANY AGE” This information comes from The National Center for Biotechnology Information: Gene Reviews: Mitochondrial Disorders Overview. More resources: “Both pediatric and adult-onset mitochondrial disease can range from mild to severe and can involve more than … Continue reading

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#1min4mito Week 4: Pregnancy Loss and Mito

“A high incidence of mid- and late pregnancy loss is also a common feature that often remains unrecognized (in mitochondrial disease)” This information comes from The National Center for Biotechnology Information: Gene Reviews: Mitochondrial Disorders Overview. and more info can be … Continue reading

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#1min4mito Week 3: Primary Mitochondrial Disorders

Many individuals (both young and old) suffer from various forms of mitochondrial disease, these range in severity and health impact for each individual. If I have learned one thing about mito… it is that NO TWO mito patients are alike. … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitochondrial Disease | Tagged , , , , , , , , | Leave a comment