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Category Archives: Awareness
Dear #ChicagoMed ~ #MitoIsReal
Last Tuesday I set my DVR to record ChicagoMed, a show I had never watched before, but one which I had heard would be featuring a storyline about mitochondrial disease. I was curious how this diagnosis would be portrayed on … Continue reading
One Mom’s Experience: Vaccine Titers
This story was shared with me, recently, by a mother who chooses to remain anonymous, about her experience with obtaining titers for her child. In her own words…
Posted in Advocacy, Autism Prevention, Awareness
Tagged diagnosis codes, flu mist, flu shot, pediatrician, reaction to a vaccine, titer, tourette's syndrome, vaccine, vaccine reaction
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Mitochondrial Week #1min4mito 2014 Wrap Up
As Mitochondrial Disease Awareness week 2014 wraps up, we are posting a compilation of the 7 Mitochondrial Minutes that we have shared via social media this past week. Please feel free to continue to share these anytime and anywhere, just … Continue reading
Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, Mitoxic, Toxins, UMDF
Tagged #1min4mito, #mitominute, acetaminophen, chemicals, environmental, genetic, mercury, mitochondria, mitochondrial, mitotoxic, mitoxic, non genetic, pesticides, pharmaceuticals, statins, toxin, tylenol
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#mito2014 Mitochondrial Symposium Top 10 Takeaways
Top 10 Takeaways from the UMDF 2014 Mitochondrial Disease Symposium in Pittsburgh PA, June 6-8, 2014 1. Scientific Meeting- Leonid Sazanov presented specifically on the structure of complex 1. He commented also on how the well-known cplx 1 inhibitor ROTENONE (pesticide) works. I was … Continue reading
Posted in Advocacy, Awareness, Genetics, Medical, Mitochondrial Disease, UMDF
Tagged #mito2014, #mitomed2014, autism, cohen, complex 1, frye, Goldstein, justina, justinapelletier, korson, medical child abuse, mitochondrial symposium, Naviaux, parikh, parkinson's disease, PD, pittsburgh, rotenone, umdf, Vockley, wallace
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#mito2014
The United Mitochondrial Disease Symposium is in Pittsburgh this year. Babyfoodsteps will be attending the scientific and some of the family sessions this year. You can follow along! HASHTAG: #mito2014 We will be live tweeting here. And live “blogging/facebooking” here. … Continue reading
Posted in Awareness, Medical, Mitochondrial Disease, Research, UMDF
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#1min4mito Week 7: Mitochondrial DNA defects vs. Nuclear DNA defects
(please forgive us, we are still trying to catch up!! 🙂 This is an important clarification! Many in the medical field hear the word mitochondrial disease and automatically assume that the disease came from the mother and that the genetic … Continue reading
#1min4mito Week 5: Mito presents at Any Age
“Mitochondrial Disorders may present at ANY AGE” This information comes from The National Center for Biotechnology Information: Gene Reviews: Mitochondrial Disorders Overview. More resources: “Both pediatric and adult-onset mitochondrial disease can range from mild to severe and can involve more than … Continue reading
Posted in #1min4mito, Advocacy, Awareness, Medical, Mitochondrial Disease
Tagged #1min4mito, any age, mito, mito minute, mitochondrial, mitochondrial disease, mitochondrial disorder
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#1min4mito Week 4: Pregnancy Loss and Mito
“A high incidence of mid- and late pregnancy loss is also a common feature that often remains unrecognized (in mitochondrial disease)” This information comes from The National Center for Biotechnology Information: Gene Reviews: Mitochondrial Disorders Overview. and more info can be … Continue reading
#1min4mito Week 3: Primary Mitochondrial Disorders
Many individuals (both young and old) suffer from various forms of mitochondrial disease, these range in severity and health impact for each individual. If I have learned one thing about mito… it is that NO TWO mito patients are alike. … Continue reading