Tag Archives: advocacy

Dear #ChicagoMed ~ #MitoIsReal

Posted on February 7, 2016 by Empowered Advocacy

Last Tuesday I set my DVR to record ChicagoMed, a show I had never watched before, but one which I had heard would be featuring a storyline about mitochondrial disease. I was curious how this diagnosis would be portrayed on … Continue reading →

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, UMDF | Tagged advocacy, advocacy task force, chicagomed, justina, justinapelletier, mito navigator toolkit, mitoaction, mitochondrial, mitochondrial medicine society, Pelletier, umdf | 4 Comments

MitoAware 2013 ~ Professor B

Posted on September 15, 2013 by Empowered Advocacy

It is that time of year again.. time to spread awareness about mitochondrial disease. Here at babyfoodsteps we have been doing this for a few years now: here, here and here. So we thought we would start off the week … Continue reading →

Posted in Advocacy, Genetics, Medical, Mitochondrial Disease, UMDF, Uncategorized | Tagged advocacy, mito awareness, mitochondrial, professor B, umdf | 1 Comment

You Know Your Child Best. Period. End of Story.

Posted on August 11, 2013 by Empowered Advocacy

I was honored to be asked by WhatToExpect.com to be a “Word of Mom” blogger and write a post about my views on motherhood! This post originally appeared on the website What To Expect on August 7, 2013. My pre-child … Continue reading →

Posted in Advocacy, Allergies, Asthma, Autism, Baby's First Test, Genetics, Medical, Mitochondrial Disease, Newborn Screening, Toxins | Tagged advocacy, allergy, autism, breastfeeding, Colic, developmental delays, eeding, gut instict, health, inner voice, intolerance, metabolic disorder, mitochondrial disease, mommy gut instict, mommy instict, mother's instict, newbornscreening, pubmed, reflux, tantrums, what to expect when you are expecting, you know your child best | Leave a comment

Mountains States Genetics Regional Collaborative Annual Meeting 2012-2013

Posted on March 21, 2013 by Empowered Advocacy

Two years ago, I was doing some Internet research regarding newborn screening and mitochondrial disease. Back then we had recently been told by doctors that this was the genetic condition they thought our daughter may have. So I was looking … Continue reading →

Posted in Advocacy, Genetics, Medical | Tagged advocacy, consumer advocacy, emergency preparedness, genetics, medical home, mountain states genetics regional collaborative, mountainstatesgenetics.org, MSGRCC.org | Leave a comment

UMDF 2012 Mitochondrial Symposium Day 2- Day on the Hill

Posted on July 2, 2012 by Empowered Advocacy

On Thursday, June 14th, I awoke bright and early to get ready for a day of mitochondrial advocacy! I was headed to Capitol Hill with 2 whole bus loads of folks ready to spread awareness to our national legislators about … Continue reading →