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Tag Archives: baby’s first test
Five Hundred Fifty Five Feet
Just over a year ago, I received an exciting email notifying me that I was selected to be part of the Baby’s First Test Consumer Task Force for 2012. What an amazing year it has been… Here is a recap of … Continue reading
Posted in Advocacy, Baby's First Test, Medical, Newborn Screening Tagged advocate, baby's first test, Consumer Task force, feet, newborn screening, SACHDNC 1 Comment
United Mitochondrial Disease Conference 2012~ Washington D.C.
For this stay-at -home- mom… I sure haven’t been staying home much these past 2 months. Next week, I will head to Washington D.C. for the 2nd time! I was just there 3 weeks ago with the Baby’s First Test … Continue reading
What I learned about Newborn Screening at SACHDNC…
I learned… 1. that my fellow members of the Baby’s First Test Task Force are incredibly passionate about newborn screening and amazing individuals who are already doing things to help others in their communities. Click on their names to learn … Continue reading
Posted in Advocacy, Genetics, Medical, Mitochondrial Disease, Newborn Screening Tagged autism, baby's first test, genetics, heritable disorders, MPSI, newborn screening, Pompe, SACHDNC 5 Comments