Nearing the end of 2013, Mitochondrial Disease was thrust into the international media spotlight, under the most unfortunate and controversial of circumstances: a custody battle over 15-year-old Mitochondrial Patient, Justina Pelletier, the state of Massachusetts, her parents, and Boston Children’s Hospital (where she has been held in a psych ward for over 10 months).
The details and some of the news coverage can be found here.
This post, while prompted by what is going on in the media, is not about one patient or one hospital… this post (and those that will follow it in 2014) are about ALL Mitochondrial Disease Patients and FOR all hospitals, doctors, nurses, therapists, teachers, family members, caregivers and any others who may interact or care for those with “Mito” at any point in their journey. Mitochondrial disease is a VERY REAL BIOLOGICAL, MEDICAL, PHYSICAL, METABOLIC disorder that is often very misunderstood by the greater medical community, media, and often times even those closest to the patient with mito…
We (here at Babyfoodsteps) intend to help change that this year.
We hope you will join us by TAKING A MINUTE FOR MITO (#1min4mito) in 2014… by:
taking 1 min to share this info on Facebook
taking 1 minute to retweet this info on Twitter
taking 1 minute to tell a friend what you have learned about Mito
taking 1 minute to learn something new about Mito
taking 1 minute to spread awareness about Mito
taking 1 minute to UNDERSTAND Mito
taking 1 minute to Connect with a patient with Mito
taking #1min4mito each and every week in 2014!
Do you accept our challenge? We hope so!
Post a comment below if you will be joining us and
WE can DO this in 2014!