Category Archives: Texas Born

Texas Born- Newborn Screening in the Lone Star State: Congenital Heart Defects and Pulse Ox

Posted on September 29, 2012 by Empowered Advocacy

By being part of the Baby’s First Test Consumer Task force, I have had the opportunity to meet some amazing people and parents this past year.  This next story comes through one of those connections and meetings. Though, I have … Continue reading →

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Texas Born: Newborn Screening in the Lone Star State: 3MGA type 1

Posted on September 28, 2012 by Empowered Advocacy

I had the pleasure of meeting Audrey and her 2 adorable son’s a few months ago when we held a Mitochondriya’ll social/fundraiser at Sweet Tomatoes for Mitoaction.org.  At that time, Audrey had found my blog because her neurologist was suspecting … Continue reading →

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Texas Born~Newborn Screening in the Lone Star State: SCID (Severe Combined Immunodeficiency)

Posted on September 27, 2012 by Empowered Advocacy

I recently had the opportunity to virtually “meet” Jennifer Garcia, an amazing mom on a mission. This is her story of her son, Cameron, and his battle with Severe Combined Immunodeficiency (also known as the “Bubble Boy Disease“). I am … Continue reading →

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Texas Born: Newborn Screening in the Lone Star State ~ Congenital Hypothyroidism

Posted on September 26, 2012 by Empowered Advocacy

  I have known Shannon for the past few years through mom groups and from shopping at the “parents of multiples sales” (with all those adorable girls clothes!). But I never knew that newborn screening had saved one of her … Continue reading →

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Texas Born: Newborn Screening in the Lone Star State ~ PKU

Posted on September 25, 2012 by Empowered Advocacy

Our family met Caroline and Elizabeth shortly after we moved to the town we now live in, nearly 5 years ago. These 2 gals became our babysitters for Big Boy B before Lady A came along. I knew very little … Continue reading →

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Texas Born: Newborn Screening in the Lone Star State~ Krabbe Disease and PKU

Posted on September 24, 2012 by Empowered Advocacy

This is an “interview” with Bill Morris. Bill and I met as part of the Baby’s First Test Task Force. Bill and his family lives in Central Texas and Bill serves as the Newborn Screening Advisory Committee Chairperson for Texas. I … Continue reading →

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