In the past few years on this journey, I have learned a lot more about non-profits and how they use their money to benefit those they represent. I wish I could go back to my days when I wore rose colored glasses and believed that ALL non-profits benefitted ALL those in need, who they served. But sadly, I have learned that that designation is rare and can only be saved for a chosen few…
So in the spirit of #givingtuesday here are my picks for some creme of the crop, top notch non-profits who are serving those they say they serve, and doing it very well! If you are in the holiday spirit of giving and are not sure where to donate… please consider one or ALL of these!
1) TEAM TMR- http://teamtmr.org/donate-now/
Team TMR is a 501c3 organization that provides help to families struggling with medical, emotional, educational and financial hardship due to complex medical needs faced by their children diagnosed with autism and other developmental disabilites.
Your donations will go towards:
- Helping families living with autism and related disorders.
- Funding our advocacy movements for people with autism to right to education, medical treatments and more.
- Supporting effective action for autism recovery and related disorders.
Help comes via funds to defray costs for practitioner appointments, recommended treatments, travel expenses to the experts in the field, materials to start homeschool or purchase an AAC device that helps facilitate communication, expenses related to autism conferences and legal expenses as applicable.
2) Autism Is Medical- http://www.autismismedical.com
Autism Is Medical was founded to serve the growing medical and educational needs of the Autism Community.
The organization’s mission is to support a comprehensive interdisciplinary medical model focused on underlying pathophysiology, appropriate treatments, equal access to healthcare, and standards of care surrounding this medically complex patient population.
3) MitoAction- http://www.mitoaction.org
MitoAction’s mission is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.
To do this, MitoAction’s goals include:
- To improve quality of life for adults and children affected by mitochondrial disease.
- To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
- To provide specific and practical materials that help patients to manage their symptoms
- To aggregate and connect the international mitochondrial disease community
- To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
- To create tools which empower patients and caregivers to be advocates for themselves or their children.
4) Epidemic Answers- http://www.epidemicanswers.org
Our vision is to restore health and vibrancy to current and future generations.
Epidemic Answers is dedicated to reestablishing vibrant health in our children and ourselves through education, empowerment and prevention. Epidemic Answers inspires change by:
- Illuminating the relationship between such prevalent childhood conditions as asthma, allergies, ADHD and autism to the underlying environmental stressors that negatively impact behavior, development and emotional wellbeing.
- Connecting families to healing and prevention resources.
- Empowering parents to partner with their healthcare professionals to optimize their family’s health.
- Bringing awareness to the next generation of parents about the relationship between their environments and their future children’s health.
What We Do
Epidemic Answers offers a starting point for parents looking to understand why their children are chronically ill and what can be done to recover them.
We provide parent-oriented educational resources and networking tools that empower individuals to confidently embrace the healing journey for themselves and their families.
Documenting hope project- http://www.epidemicanswers.org/solutions/canary-kids/
5) Pennsylvania Elks Home Service Program- http://www.paelkshomeservice.org/index.php
what we do
Since 1963, the PA Elks Home Service Program has been helping to improve the quality of life for thousands of children and adults throughout Pennsylvania. We provide support and advocacy services to individuals of any age who have a developmental disability.
Last year, the Elks Home Service staff drove 251,858 miles and made 11,976 home service visits, helping families in every county in Pennsylvania.
Services are provided:
- by a Nurse and/or Medical Care Coordinator
- to Pennsylvania residents
- in the person’s home environment
- without discrimination
- at NO CHARGE
Some ways the Elks Home Service Program can help:
- Provide in-home medical care coordination services
- Advocate for an individual’s legal and human rights
- Provide information regarding resources and services available
- Assess needs and help to access equipment
- Advocate for appropriate educational services
- Assist with finding activities within the community
- Offer instruction regarding home care
- Provide emotional support
- Help with vocational goals
- Assist with residential options
- Provide referrals to appropriate agencies in the community
- Interpret clinical findings and act as a liaison between health care providers