10 Fingers ~ 10 Toes ~ 10 facts about Newborn Screening that You need to KNOW

What EVERY expecting Parent needs to know…

(about newborn screening)

1. Newborn screening is available for every newborn baby in the United States.

2. Newborn screening is performed soon after the birth of your baby, and in most cases, while you are still in the hospital.

3. Newborn screening is actually 3 types of screening: 1) blood spot screening for metabolic, blood and hormonal disorders 2) hearing screening for hearing loss 3) pulse ox screening for congenital heart diseases.

4. Newborn Screening is currently evaluated by and recommended by the US Government (HHS), for nearly 60 disorders.

5. But, not all babies will be screened for all of the nearly 60 disorders. It depends on where your baby is born. There is variability in the number and types of conditions found on each state’s newborn screening panel, which is determined by each state’s legislation and public health departments implementation of testing.

6. Supplemental newborn screening is available for these disorders if your state does not test for all of them, but you must request this additional screening and work with your pediatrician to have it done on your baby.

7. Most of these infants LOOK perfectly healthy at birth (with 10 fingers and 10 toes and a cute little nose)  and come from families with no history of the disorder

8. Most affected babies identified through newborn screening who receive treatment early, grow up healthy with normal development.

9. Newborn screening has been around for nearly 50 years, since the PKU test was developed in the 1960’s to test for the metabolic disorder called phenylketonuria.

10. Newborn Screening SAVES babies lives…each and every day. A treatable condition will be detected in ONE in every 300 babies born. But, if these conditions are not caught early enough, often times the damage is irreversible resulting in mental retardation, autism, and even sudden death (SIDS).


Babyfoodsteps is launching our Baby’s First Test Newborn Screening Awareness project, today, in honor of September~ Newborn Screening Awareness month!  Please share with a momma or daddy or grandma and grandpa to be!

You just may save a precious little life!

For more information on Newborn Screening, please visit Babyfoodstep’s Resource page and Baby’s First Test (a national clearinghouse of information on newborn screening).

This post is part of  Top Ten {Tuesday} , please pass it along!


About Empowered Advocacy

www.EmpoweredAdvocacy.com Pediatric Patient Advocate
This entry was posted in Advocacy, Baby's First Test, Medical, Newborn Screening. Bookmark the permalink.

9 Responses to 10 Fingers ~ 10 Toes ~ 10 facts about Newborn Screening that You need to KNOW

  1. Thanks for this information. I clicked through and saw that Beta Thalassemia is one condition that is tested on newborn screen in Texas. Both of my kids have this, but were not diagnosed on newborn screen. We were told the newborn screen was normal. Weird huh? I wonder if it was added to the screen after 2008? We found out when the boys were almost a year old during routine blood testing in their pediatrician’s office. I also wish genetic syndromes like 22q11.2 duplication syndrome were added. It took years for us to get a diagnosis and we could’ve started treatment earlier.

  2. Thanks for the great information. I am passing it on. AND, if you scroll through your post kind of quickly, the little feet look like they are dancing. (heheheh)

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