Mitoaction Mitochondriya’ll Family Social, Katy TX

Today, I had the amazing opportunity to meet 10 families who were also on this Mitochondrial Disease Path. Ten families, some of whom have a diagnosis and have been on this  journey much longer than us with children in their teens,  some of whom just recently received a diagnosis and have been seeking information and support, and some of whom, like us, are undiagnosed but suspected of having mitochondrial disease and whom are going through the painstaking process of testing and waiting to figure out if mito is what “it” is for their child. No matter where we all were in this journey, however, the one thing that was amazing to me, was to be in a room filled with families who “GOT IT”, who you could share a story with about your child and instead of a look of disbelief and shock that you may normally get telling the same story to a stranger (or a friend), their heads shook in agreement…in that “been there, seen that, done that” type of way. The comfort and support that type of understanding brings to another mom is….. priceless.

A huge THANK YOU goes out to for sponsoring today’s social and to Memorial Hermann Hospital Katy for hosting us. Without these 2 organizations, today would not have been possible…and I am so grateful that TODAY WAS POSSIBLE, for so many reasons.

Here are some pictures of the event…and some of the “fun” details that I (along with D.N. -your key chains were a HUGE hit! and E.B.– your bows rock!) have been working on for the past few weeks. Thanks ladies, I couldn’t have done it without (mitochondri)YA’LL! 🙂

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7 Responses to Mitoaction Mitochondriya’ll Family Social, Katy TX

  1. Diane says:

    What a GREAT post! I am very great to you Kristi for volunteering your Energy and Time- both are such precious commodities in our Mito families!

    MitoAction and Memorial Hermann Katy get a huge Thank you from all of us in Houston!

    I foresee a great new, supportive community coming from your efforts!


  2. Diane says:

    “grateful” 🙂

  3. Elizabeth says:

    I can’t thank you enough for organizing today’s social. It was so wonderful to meet all the families and share information and encouragement. I am looking forward to building relationships of support. Can’t wait for our next meeting!

  4. Jessica says:

    A friend just directed me to your blog because we are in the process of trying to get a mito diagnosis for my daughter. I can’t believe how long it can take to diagnose even when all of the doctors suspect it. Anyway, happy to connect with you. Wish I lived in Texas!

    • Baby(food)Steps says:

      @jessica thanks for popping over and saying hello! the diagnostic journey has been a long one…in the meantime though we are happy to have found a dietary link to help manage things!
      Wish you lived closer too…what friend can I thank for sending you this way??

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