Category Archives: Advocacy

How to feed your family without Losing your MIND!

When we began this journey with a very fussy, “colicky” baby girl, all I wanted to do was feed my family. All I wanted to do was nourish the little ones (and one big one) who were counting on me … Continue reading

Posted in Advocacy, Allergies, Conference, Medical, Organic, Pesticides, Research | Tagged , , , , , , , , , , , , , , | 7 Comments

Mitochondrial Week #1min4mito 2014 Wrap Up

As Mitochondrial Disease Awareness week 2014 wraps up, we are posting a compilation of the 7 Mitochondrial Minutes that we have shared via social media this past week. Please feel free to continue to share these anytime and anywhere, just … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitoaction, Mitochondrial Disease, Mitoxic, Toxins, UMDF | Tagged , , , , , , , , , , , , , , , , | Leave a comment

Cancer, Autism, and Faith

A number of years ago, when we were in the thick of reactions, hospitalizations and testing, trying to figure out what was wrong with our little one,  I struggled to find a church home where I could find peace, solace, … Continue reading

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Vaccination: A Conversation, Pittsburgh, PA

Yesterday, I had the amazing opportunity to attend an event in what has to be one of the most beautiful spots in Pittsburgh: The Phipps Conservatory. Surrounded by the most beautiful plants, tress, and flowers: thought leaders, practitioners, and parents gathered … Continue reading

Posted in Advocacy, Conference, Genetics, Medical, Methylation, Mitochondrial Disease, Mitoxic, Research, Toxins | Tagged , , , , , , , , | 1 Comment

#mito2014 Mitochondrial Symposium Top 10 Takeaways

Top 10 Takeaways from the UMDF 2014 Mitochondrial Disease Symposium in Pittsburgh PA, June 6-8, 2014   1. Scientific Meeting- Leonid Sazanov presented specifically on the structure of complex 1. He commented also on how the well-known cplx 1 inhibitor ROTENONE  (pesticide) works. I was … Continue reading

Posted in Advocacy, Awareness, Genetics, Medical, Mitochondrial Disease, UMDF | Tagged , , , , , , , , , , , , , , , , , , , , | 3 Comments

A Consumer’s Reflections on #ACMGmtg 2014

Recently, I had the opportunity to attend the American College of Genetics and Genomics meeting in Nashville, Tennessee.  This opportunity was made available to me through a travel grant application I submitted through the regional genetics collaborative that I have … Continue reading

Posted in Advocacy, Autism, Baby's First Test, Genetics, Medical, Mitochondrial Disease, Newborn Screening, Research | Tagged , , , , , , , , , , , , | 1 Comment

#1min4mito Week 7: Mitochondrial DNA defects vs. Nuclear DNA defects

(please forgive us, we are still trying to catch up!! :) This is an important clarification! Many in the medical field hear the word mitochondrial disease and automatically assume that the disease came from the mother and that the genetic … Continue reading

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#1min4mito Week 5: Mito presents at Any Age

“Mitochondrial Disorders may present at ANY AGE” This information comes from The National Center for Biotechnology Information: Gene Reviews: Mitochondrial Disorders Overview. More resources: “Both pediatric and adult-onset mitochondrial disease can range from mild to severe and can involve more than … Continue reading

Posted in #1min4mito, Advocacy, Awareness, Medical, Mitochondrial Disease | Tagged , , , , , , | 1 Comment

#1min4mito Week 4: Pregnancy Loss and Mito

“A high incidence of mid- and late pregnancy loss is also a common feature that often remains unrecognized (in mitochondrial disease)” This information comes from The National Center for Biotechnology Information: Gene Reviews: Mitochondrial Disorders Overview. and more info can be … Continue reading

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#1min4mito Week 3: Primary Mitochondrial Disorders

Many individuals (both young and old) suffer from various forms of mitochondrial disease, these range in severity and health impact for each individual. If I have learned one thing about mito… it is that NO TWO mito patients are alike. … Continue reading

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